We just got home and wanted to thank everyone for your prayers and encouragement. The Neurologist doesn't think that COMA fits as a diagnosis. She is able to move her eyes with out moving her head. He also doesn't think that it is a "brain" issue either. When Masie closes her eyes the black spots go away - if it were a migraine for example the black images/sparkles would still be present (in her mind). He feels like the MRI is still necessary and wants us to be seen by a Pedi Neuro Opthalmologist as a "tie breaker" so to speak.
So we still do not have any cut and dry answers. I am confident the MRI will be clear. The Neurologist feels that it may be some sort of "tick" that may be exercised under stress or exhaustion. I do not feel AT ALL that there are any life altering issues we are dealing with. Last night however was a different story. Again, thank you for your prayers of peace because I have walked in them all day.
Masie really wanted to bring this Dr. a gift. So last night we created a "Joy" Jar to give to him. I shared with her that he sometimes sees really sick children and may need to find something to have joy about. She collected all her marbles (the toy kind not the head kind:) and put them in a bag to give to him (even though it was tied with a pink ribbon). Each time he felt happy about something he could add a marble to his jar. You should have seen his face when she gave him this gift. I know I was blessed by it and it was obvious he was too.
God will not waste a single prayer that was prayed on Masie's behalf. He has a reason for all of this though we may never know. If I had a Joy jar I would fill it up because we are not facing a life threatening issue - just life changing:) When faced with scary possibilities it has a way of making you embrace more fully what you already have. We are giving out hugs and kisses by the dozen, reading longer and laughing more...counting our blessings for sure.
More on this as I get info but until then there are 6 yr old Birthday Party inviations to make, a baby room to complete and lots in between:)
Friday, November 14, 2008
Better News
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3 comments:
i am soo happy to hear the good news!! And i love the joy jar present!! What a thoughtful, sweet girl you have!!
we will be praying that God will continue to protect her health!!
staci
God is good and in TOTAL control! I'm so glad to hear this news - make each day a special day and thank Him for each blessing! Your're a really great mom, Stacy.
Love,
Jo Ann
Stacy,
God has MK in the palm of his hands and will continue to protect her.
I will pray for her and your family.
If you need anything just let me know!
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